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Sorry I haven't updated in a couple of weeks! We have been getting settled in and used to out routine. Robert is doing really well. His counts are continuing to come up and he is feeling better everyday, he looks better everyday as well!
He has still beeing getting nausea and had a little trouble eating, but it has gotten a lot better and he says things taste better all the time. He did get the CMV virus, which is a virus that 80% of people have, but it lies dormant because our immune systems keep it in check, but since Robert's immune system is low, it started making him really tired, sluggish, and he wasn't eating much. But, they caught the virus in his blood work and he is getting IV antibiotics twice everyday. Once at the Clinic at we do the other at home. He has been doing a lot better since!
He got a bone marrow biopsy last thursday, and we are still waiting on the results, so I will let you all know how that goes.
We have been going to the Clinic everyday, but yesterday was our first day off and it was very nice not to have to spend 3 hours there. They are also giving us this weekend off, well at least saturday. So that is good news. It means they feel Robert is coming along just fine and we are so grateful! We are truly blessed with how well he has done.
We miss Vegas and can't wait to come home! Robert's 100 day mark is August 2nd, so we are really looking forward to it! Thank you everyone for everything you have done for us and our families! We appreciate it so much!
All our love.
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We are doing well. Roberts numbers are .1 one today for the first day, so YAY for that. His mouth sores have gotten worse, so it is hard to eat and drink, and I know it doesn't feel good. He is still sleeping a lot, and resting his body which is good, and we walk a everyday, which I think helps a lot. Other than that we just hang out, watch TV and play games. Hospital life is super exciting as you can tell ;).
Dr. Yeager said Robert's new bone marrow is working right now to build up a new system and we should see his number coming back up in about a week, give or take. So right now we are practicing our patience. But, soon enough we will be able to go to our apartment. Definitely something to look forward to!
FYI- Linda and her ward set up a big yard sale that is going on this saturday in the Las Vegas High School parking lot to raise money for Amanda's expenses for being Robert's donor. I'm not totally sure about the time but, I will find it out and let you all know. Everyone loves a yard sale! :) If anyone hsa any questions, just post them and I will answer!
Thank you for continuing with all of your support for Robert and myself. I know we both immensley appreciate it.
All our love.
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The Donor and the Donee...  Well things are going really well. The last 3 days before this were pretty rough for Robert, the last kind of chemotherapy he received was not so nice for him. He was really nauseous and threw up quite a bit, but today he is feeling loads better and has been keeping all of his food down. So that is fantastic. He isn't quite neutropenic yet, but he most likely will be tomorrow. Today was transplant day. Amanda went early to the hospital and they hooked her up to the machine that cycles and spins out her stem cells. She was on it for 4 hours, she is a champ. She never thought twice about doing this for Robert at all, she is amazing. And we are so grateful. After Amanda was done today they had to make sure there were enough stem cells based on Robert's size. Luckily there were just the right amount. Robert received her stem cells around 5:00pm, it went really fast, it only took about 40 minutes and it was pretty much just like any other kind of transfusion, they just put it in his body more quickly. Our nurse told us most people think its kind of anticlimactic, which I could kind of understand, but which I am also grateful for. Robert did really well, he had no problems. Robert's numbers are low now, and soon they will be even lower, so when they start giving him neupogen and they start building back up, the doctors are looking for the graft of Amanda's bone marrow to take and then his body will have all new bone marrow, and blood. It is pretty amazing. We are expecting that his numbers will start rising in about 10 days. Well that is all I have for tonight, I hope I answered everyone's questions that they had. We are doing well and being continually blessed. Thank you to all of those who fasted with me on wednesday, I know it means the world to Robert. Thank you for the continual love and prayers! All our love.
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